{"id":5015,"date":"2025-07-14T09:07:58","date_gmt":"2025-07-14T07:07:58","guid":{"rendered":"https:\/\/stopalzheimer.be\/?p=5015"},"modified":"2025-07-14T09:08:00","modified_gmt":"2025-07-14T07:08:00","slug":"capacite-decisionnelle-des-aines-stop-alzheime","status":"publish","type":"post","link":"https:\/\/stopalzheimer.be\/nl\/capacite-decisionnelle-des-aines-stop-alzheime\/","title":{"rendered":"La capacit\u00e9 d\u00e9cisionnelle des a\u00een\u00e9s au c\u0153ur de la recherche sociale"},"content":{"rendered":"\n

La capacit\u00e9 d\u00e9cisionnelle des a\u00een\u00e9s au c\u0153ur de la recherche sociale<\/h1>\n\n\n\n

Ils viennent d\u2019horizons diff\u00e9rents, mais partagent une m\u00eame conviction : les personnes \u00e2g\u00e9es vivant avec des troubles cognitifs (maladie d\u2019Alzheimer ou pathologies apparent\u00e9es) ont encore leur mot \u00e0 dire. Juriste, philosophe, chercheuse en bio\u00e9thique\u2026 Caroline Guffens, C\u00e9sar Meuris et Claire Rommelaere travaillent ensemble sur un projet aussi essentiel qu\u2019innovant, financ\u00e9 par notre Fondation. D\u00e9couvrez leur interview.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Quel est votre parcours ?<\/h3>\n\n\n\n

Nous sommes trois chercheurs issus de disciplines diff\u00e9rentes, mais rassembl\u00e9s par une m\u00eame pr\u00e9occupation : faire progresser la reconnaissance des droits des personnes \u00e2g\u00e9es, m\u00eame lorsqu\u2019elles sont confront\u00e9es \u00e0 des troubles cognitifs.<\/p>\n\n\n\n

Gr\u00e2ce \u00e0 nos expertises compl\u00e9mentaires (droit, g\u00e9rontologie, philosophie et \u00e9thique du vieillissement), nous sommes en mesure d\u2019aborder la question de la capacit\u00e9 d\u00e9cisionnelle des personnes \u00e2g\u00e9es de mani\u00e8re globale, en lien avec les r\u00e9alit\u00e9s v\u00e9cues sur le terrain.<\/p>\n\n\n\n

Sur quoi porte votre projet ?<\/h3>\n\n\n\n

Il s\u2019agit de valoriser les r\u00e9sultats de notre recherche actuelle intitul\u00e9e \u00ab Exploration des m\u00e9canismes de prise de d\u00e9cisions par et pour les personnes pr\u00e9sentant des difficult\u00e9s cognitives et r\u00e9sidant en maison de repos \u00bb. A travers pr\u00e8s de 70 entretiens de r\u00e9sidents et de professionnels de 6 maisons de repos \u00e0 Bruxelles et en Wallonie, nous nous demandons comment la voix des ain\u00e9s souffrant de troubles cognitifs est port\u00e9e, entendue, consid\u00e9r\u00e9e, comprise, si leurs d\u00e9cisions peuvent \u00eatre suivies d\u2019effet ou pas, surtout dans les situations de discordances avec d\u2019autres voix. En effet, tous \u00e0 notre niveau nous constatons des difficult\u00e9s \u00e0 concr\u00e9tiser le droit des a\u00een\u00e9s de prendre des d\u00e9cisions pour eux-m\u00eames, surtout lorsqu\u2019ils \u00e9prouvent des difficult\u00e9s cognitives. Nous avons d\u00e9cid\u00e9 de nous concentrer sur la maison de repos o\u00f9 les situations de prise de d\u00e9cision sont nombreuses au quotidien. \u00c0 quelle heure se lever, que mettre sur sa tartine ou quel v\u00eatement porter ? O\u00f9 s\u2019installer pour passer la journ\u00e9e ? Participer \u00e0 l\u2019activit\u00e9 ou pas ? Prendre ou ne pas prendre ce m\u00e9dicament, \u00eatre hospitalis\u00e9, conten- tionn\u00e9, aliment\u00e9 artificiellement, s\u00e9curis\u00e9 dans un service ferm\u00e9 ?<\/p>\n\n\n\n

Quel est votre objectif ?<\/h3>\n\n\n\n

Nous voulons mieux comprendre comment la capacit\u00e9 d\u00e9cisionnelle se construit dans la vie quotidienne en maison de repos. Il ne s\u2019agit pas d\u2019une capacit\u00e9 \u00ab tout ou rien \u00bb : elle d\u00e9pend du contexte, du soutien qu\u2019on apporte, et du regard qu\u2019on porte sur la personne.<\/p>\n\n\n\n

Notre ambition est de cr\u00e9er des outils concrets et accessibles :<\/p>\n\n\n\n

    \n
  • des supports p\u00e9dagogiques pour les professionnels,<\/li>\n\n\n\n
  • des fiches illustr\u00e9es pour les familles et les r\u00e9sidents eux-m\u00eames,<\/li>\n\n\n\n
  • un guide de sensibilisation destin\u00e9 au grand public.<\/li>\n<\/ul>\n\n\n\n

    En valorisant les paroles des a\u00een\u00e9s, en rendant visibles les points de tension comme les r\u00e9ussites, nous esp\u00e9rons renforcer la capacit\u00e9 d\u2019agir des personnes \u00e2g\u00e9es, m\u00eame fragilis\u00e9es cognitivement. Et, \u00e0 travers cela, contribuer \u00e0 un changement de regard de la soci\u00e9t\u00e9 sur la vieillesse et les maladies neurod\u00e9g\u00e9n\u00e9ratives.<\/p>\n\n\n\n

    Que repr\u00e9sente pour vous le soutien de la Fondation Stop Alzheimer ?<\/h3>\n\n\n\n

    Ce soutien est essentiel. Il nous permet non seulement de finaliser notre recherche, mais surtout de transformer nos analyses en outils utiles, diffusables et concrets.<\/p>\n\n\n\n

    Les sciences humaines et sociales sont encore trop peu financ\u00e9es, alors qu\u2019elles sont indispensables pour interroger nos pratiques, faire \u00e9voluer les mentalit\u00e9s et am\u00e9liorer la qualit\u00e9 de vie des personnes concern\u00e9es.<\/p>\n\n\n\n

    Que Stop Alzheimer choi- sisse de soutenir un projet comme le n\u00f4tre est une reconnaissance forte de notre travail, mais aussi du r\u00f4le crucial que joue la parole des personnes \u00e2g\u00e9es dans la r\u00e9ponse \u00e0 Alzheimer et aux mala- dies apparent\u00e9es. Pour cela, nous vous remercions sinc\u00e8rement.<\/p>\n\n\n\n

    <\/p>\n","protected":false},"excerpt":{"rendered":"

    La capacit\u00e9 d\u00e9cisionnelle des a\u00een\u00e9s au c\u0153ur de la recherche sociale Ils viennent d\u2019horizons diff\u00e9rents, mais partagent une m\u00eame conviction : les personnes \u00e2g\u00e9es vivant avec des troubles cognitifs (maladie d\u2019Alzheimer ou pathologies apparent\u00e9es) ont encore leur mot \u00e0 dire. Juriste, philosophe, chercheuse en bio\u00e9thique\u2026 Caroline Guffens, C\u00e9sar Meuris et Claire Rommelaere travaillent ensemble sur […]<\/p>\n","protected":false},"author":8,"featured_media":5020,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[29],"tags":[],"locatie":[27,26,28],"class_list":["post-5015","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-onderzoek","locatie-help-mee","locatie-homepage","locatie-over-alzheimer"],"acf":[],"yoast_head":"\nLa capacit\u00e9 d\u00e9cisionnelle des a\u00een\u00e9s au c\u0153ur de la recherche sociale - Stop Alzheimer<\/title>\n<meta name=\"description\" content=\"Un trio de chercheurs explore comment renforcer la capacit\u00e9 de d\u00e9cision des personnes \u00e2g\u00e9es vivant avec des troubles cognitifs, en maison de repos. 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